May 12 was chosen as International Awareness Day for Complex Immunological and Neurological Diseases (C.I.N.D.) since 1992.

The diseases included in C.I.N.D., such as Myalgic Encephalomyelitis (ME) Chronic Fatigue Syndrome (CFS), Chronic Lyme Disease (CLD), Fibromyalgia (FM), Gulf War Illness (GWI) and Multiple Chemical Sensitivity (MCS).

Disabled and Chronically ill Americans to Occupy the United States Dept. of Justice (USDOJ) from  June 1, 2015 to July 4, 2015 in Washington, D.C

#OccupyTheUSDOJ #June2015 is being held at 950 Pennsylvania Ave., NW, Washington D.C.  20530
See https://www.facebook.com/events/804422736243381

For questions on the science or crimes involved please join:
https://www.facebook.com/groups/OccupyUSDOJ/

Chargesheets @ OhioActionLyme.org


Promoting blog @ http://badlymeattitude.com/

Lyme Events

http://whatislyme.com/lyme-events/


Event List - May 2015 International Awareness Month:

(List courtesy of May12th.org)
 

If you have an event to add, please either email info@may12th.org or post the details of your event on
https://www.facebook.com/events/1687966454755997/ .
For more information about May 12th International Awareness Day please see www.may12th.org or www.facebook.com/may12th.awareness.
There is also a list being maintained here https://www.facebook.com/groups/The.M.E.Chat.Room/permalink/848189741885450/?hc_location=ufi .

Note: This list can be accessed at www.bit.ly/May12th2015
 

Worldwide

Italy

Japan

Northern Ireland

Netherlands

Republic of Ireland

South Africa

Sweden

United Kingdom (UK)

  • Cooking up a blue storm to raise awareness and funds for Invest in ME Research Charity for Myalgic Encephalomyelitis (ME) see https://www.facebook.com/CordonBleuForME

  • Invest in ME’s 10th International ME Conference 2015 will take place on 29th May 2015 in Westminster, London. See https://www.facebook.com/events/1025707540777368/

  • To be confirmed - Wainhouse Tower, Halifax, West Yorkshire, UK will lit up May 12th

  • Brighton Wheel on Tuesday May 12th will be lit up. Meeting at 8.00 in front of the Wheel with posters and banners and anything you can think of for Awareness for 8.30 Light Up. There will be a photographer from the Argus taking photos at 8.30

  • The Sea Life Centre in Brighton UK will be lit up during the day May 12th.

  • Fibroduck Foundation has arranged for the Blackpool tower  to be lit up May 12th. It  will be lit up PURPLE, and the Heart BLUE, with FIBRODUCK text running through the heart.We'll also be inviting the press along and giving out information flyers to passers by. We'll also be filming the event so you will all get to see. See http://www.fibroduckfoundation.com/blackpool_tower_may_12th.html .

  • Tymes Trust are holding an event May 11th at Ingatestone Hall. See http://www.tymestrust.org/txt/alert201502invitation.txt 

  • The 25% Group has provided a draft letter to be sent to MP's. See Awareness 2015 on http://www.25megroup.org/campaigning_awareness.html#aware2015

United States (US)

  • New York City - The Caterpillar Walk program is a fundraising campaign designed to raise awareness and support for Fibromyalgia and Chronic Pain. See www.fmcpaware.org/CaterpillarWalkNYC

  • The National Fibromyalgia and and Chronic Pain Association has a list of events in the US on their website http://www.fmcpaware.org/a-day-events-2015.html

  • Washington DC - MEadvocacy.org had a demonstration on April 28.

  • Haines City, Florida and Anaheim, CA has proclaimed the day.

  •  

  • The Peace Bridge will be lit with all 3 colours on May 12th. 

  • Springfield, OH has proclaimed the day.

 

 

 

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M.E. Advocacy - A project of May12.org

Your source for advocacy information and actions for ME and CFS

Please Join Us

WE firmly believe that: AWARENESS, IDENTIFICATION, ACKNOWLEDGEMENT, EDUCATION, PREVENTION, more RESEARCH and a CURE are crucial!
We MUST reach "the tipping point" to get the majority of PEOPLE on board with our AWARENESS CAMPAIGN!

NO ONE ELSE should have to suffer with these wretched NON DISCRIMINATORY DISEASES.

Protect the children.

The entire month of May is now dedicated as AWARENESS month for those who suffer from CIND's.
*Including Myalgic Encephalomyelitis (ME) & chronic Lyme Disease (CLD).

Some ways of promoting Awareness Day is to phone, e-mail, and/or fax to politicians, news media and public health officials.

We should plan a coordinated RALLY/ ACTIONS in many locations ALL over the World and invite the news media!

Let's take this a step further & INVITE:

The Girl Scouts, Boy Scouts, Legions, Universities, Colleges, schools, International or American Camp(ing) Associations, Attorneys, Veterans, Veterinarians, Pharmacists, doctors, nurses, cosmetologists, barbers, teachers, students, physical trainers, blood banks, etc..

ACTION/RALLY/ PROTESTS at the following:

  • government health offices
  • major cities, state capitols, provinces, regions
  • hospitals, clinics, malls, farmer's market,
  • protest from bed if necessary, even if the protest is only one person
  • on-line by recording and putting the video on YouTube

That way we make a huge splash.

First day local (either May 10, or May 11th ~or whatever day is best for your location!) ~ in person, and the second day global and on the internet!

Using visual aids like:

  • Picket signs, brochures
  • wearing t-shirts, buttons or ribbons
  • wearing prison clothes (trapped in our own bodies with shackles)
  • canes, walkers, wheelchairs, motor scooters
  • beds, blankets, pillows, sunglasses, ice packs, heating pads
  • sacks with our meds & supplements, side walk chalk outlines, or a casket (with names of those deceased)
  • mannequins (for those who are unable to attend, with attached picture/statement of someone who is bedbound/housebound & can't make it)
  • tent or cardboard box house (for those who lost their home due to illness)
  • human hamster ball (like living life in a bubble)
  • tie ribbons to visible trees, mailboxes or doors
  • yard signs, wristbands
  • carry ketchup in ziplock baggies to simulate BLOOD & ANYTHING else we can DO to GET THE WORLD's ATTENTION!!!!