Event List - May 2014 International Awareness Month

Please send us a brief description and link if you would like your event included on this list.


May, 2014 - Lyme Events List - http://whatislyme.com/category/events/


May 2014 - Lyme Awareness Events Map - http://whatislyme.com/lyme-awareness-events-map/

 "Lyme Awareness" and "Lyme Survivor" garden flags. Check out: www.lymeawarenessflags.com

May Awareness: Show Your True Colors - Show your disease ribbon color online or on your house or car - take a photo and send in - Details here.

5/5/2014 - 5/29/2014 - 7916 Main St, Maple Grove, MN 55369 Lyme Art Exhibition Vicki Koecher, Kara Welch http://maplegroveartscenter.org/

5/9/2014  (May 9): Limerick, IRELAND. 12 PM (noon) Limerick Strand Hotel, Ennis Road, Limerick City http://www.strandhotellimerick.ie/. Dr. Charles Shepherd talk on M.E. Admission: E5 on door. Details here: http://www.irishmecfs.org/events.html#shepherd

5/10/2014  (May 10): Galway, IRELAND. 2 PM. Connacht Hotel, Renmore, Galway City http://www.theconnacht.ie/. Dr. Charles Shepherd talk on M.E. Admission: E5 on door. Details here: http://www.irishmecfs.org/events.html#shepherd


5/10/2014 - Chinguacousy Park, Brampton, Ontario Lyme Walk http://www.lymewalkbrampton.ca/


5/10/2014 10:00 AM-5:00 PM - 100 Cabela Dr, Hamburg, PA 19526 Lyme Awareness Campaign Bambi Albert, Maria Purcel http://wwldap2014.blogspot.com/2014/03/pennsylvania-in-worldwide-lyme-protest.html


5/10/2014  12:00pm - 3:00pm Capitol Bldg (outside on West side), Des Moines, Iowa. Worldwide Lyme Rally and International Awareness Day for C.I.N.D.s. Skip Good, Joni Comstock

In conjunction with: RIDE 4 Lyme 1:00 pm - 3:00 pm  Ryno All Terrain Products LLC will be joining us in support.


5/11/2014 (May 11): Dublin, IRELAND. 3 PM, Carlton Hotel Dublin Airport, Old Airport Rd, Cloghran (Santry), Dublin Airport. http://www.carltondublinairport.com/. Dr. Charles Shepherd talk on M.E. Admission: E5 on door. Details here: http://www.irishmecfs.org/events.html#shepherd

May 12, 2014 - Facebook Event for all C.I.N.D.'s (Complex Immunological & Neurological Diseases - Recognizing the 22nd Anniversary of May 12 International Awareness Day -  Facebook Event


May 12, 2014 - May 12 International ME Awareness Day Thunderclap by Toby Vokal. Sign up now - the Thunderclap will automatically fire off May 12 at 12:00pm.


May 12, 2014 - May 12 International ME Awareness Day Thunderclap by May12th.org. Sign up now - the Thunderclap will automatically fire off May 12 at 12:00pm.


May 12, 2014 - May 12 ME Blog Bomb  - Write a blog post about ME and post it on May 12 for International Awareness Day. Details here.


May 12, 2014 at 12:00 PM ME Demonstration - Department of Health and Human Services, San Francisco, CA, USA

This year, marks the 30th anniversary of the Incline Village, Nevada outbreak of "chronic fatigue syndrome". Patients will be holding a demonstration outside the Department of Health and Human Services building in San Francisco from noon-1PM on May 12, 2014. Click here to RSVP.


May 12, 2014 at noon-1:30 PM - ME Demonstration - The Capitol Building, Washington, DC, USA.

Our representatives need to know that ME is a serious illness. We are their constituents - and we vote! Please join us! Click here to RSVP.


May 12, 2014 - MAY 12th LIGHT UP THE NIGHT CHALLENGE - get as many buildings as possible in your country to light up with one of the 3 colours used on May 12th - blue, purple or green. Public buildings or even your house! Take a photo and send it in. Details here.


May 12, 2014 - Vigil for for ME Awareness - http://www.vigilformeawareness.org.uk./


5/16/2014 11:00 AM-2:00 PM - 7 Maine 11, Augusta, ME 04333 Lyme Rally/Protest Holly Lounder ellsworthata@gmail.com http://wwldap2014.blogspot.com/2014/01/maine-in-wwldap-2014.html


5/17/2014 10:00 AM-2:00 PM - 158 Main St, Damariscotta, ME 04543 Lyme Awareness Booth


5/16/2014-5/17/2014 11:00 AM-4:00 PM - USA Water Tower Place, Water Tower Park, The Tribune Tower, IL State Medical Society Chicago IL Lyme Rally/Protest Jim Berger bjimbest@aol.com http://2014chicagolymeprotest.blogspot.com/


May 16 - 18, 2014 - Worldwide Lyme Protest on FacebookFacebook Event Details


May 16-18, 2014 - Worldwide Lyme Protest U.S.   Facebook Event Details


May 16-18, 2014 - Lyme Protests by State (USA) - http://wwldap2014.blogspot.com/p/state-events.html


May 16-18, 2014 - Lyme Protests by Country (International) - http://wwldap2014.blogspot.com/p/countries-involved.html


5/17/2014 2:00 PM - 6703 Tyee Dr. NW, Gig Harbor, WA 98332 Lyme Rally/Protest Lorraine Hart, Anna Hart


5/17/2014 1:00 PM-3:00 PM - Albuqueque, NM Lyme Rally/Protest Diane Marie Dianemarie555@gmail.com http://wwldap2014.blogspot.com/2014/03/new-mexico-worldwide-lyme-disease.html


5/17/2014 10:00 AM-2:00 PM - 158 Main St., Damariscotta ME 04543 Lyme Awareness Booth http://wwldap2014.blogspot.com/2014/03/worldwide-lyme-disease-awareness-booth.html


5/17/2014 - 425 Adams Dr., Crestview, FL 32536 Lyme Awareness Protest Connie Murray


5/17/2014 - 835 Museum Cir, Jacksonville, FL 32207 Lyme Benefit Concert/Lectures Melissa Ferwerda Bell FLDA@comcast.net http://wwldap2014.blogspot.com/2014/01/florida-wwlda-event-bite-back-for-cure.html


5/17/2014 11:00 AM-2:00 PM - 2 E Main St, Madison, WI 53703 Lyme Rally/Protest Jennifer Christie, Hannah Hollingsworth http://madisonarealymesupportgroup.wordpress.com/


5/18/2014 12:00 PM - Palisades Park, Santa Monica, CA 90401 Lyme Walk Rally/Protest Sandi Bohle
https://www.facebook.com/events/368947526575915/ http://wwldap2014.blogspot.com/2014/03/southern-california-worldwide-lyme-walk.html


May 18, 2014 - Loudon Lyme 5K Run/Walk - Sterling, VA  http://www.loudounlyme.org/


May 22-23, 2014 - The Mayday Project will be holding a large protest at the IDSA headquarters in Arlington, VA.
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M. E. Advocacy






M.E. Advocacy - A project of May12.org

Your source for advocacy information and actions for ME and CFS

Please Join Us

If you would like your May 2014 EVENT added to our list; please send a brief description and the link.
"JOIN" us on May 10 - 12, 2014, to support the "22nd" Anniversary International Awareness Day in every way you can!

We MUST reach "the tipping point" to get the majority of PEOPLE on board with our AWARENESS CAMPAIGN!

NO ONE ELSE should have to suffer with these wretched NON DISCRIMINATORY DISEASES.

Protect the children.

The entire month of May is now dedicated as AWARENESS month for those who suffer from CIND's.
*Including Myalgic Encephalomyelitis (ME) & chronic Lyme Disease (CLD).

Some ways of promoting Awareness Day is to phone, e-mail, and/or fax to politicians, news media and public health officials.

We should plan a coordinated RALLY/ ACTIONS in many locations ALL over the World and invite the news media!

Let's take this a step further & INVITE:

The Girl Scouts, Boy Scouts, Legions, Universities, Colleges, schools, International or American Camp(ing) Associations, Attorneys, Veterans, Veterinarians, Pharmacists, doctors, nurses, cosmetologists, barbers, teachers, students, physical trainers, blood banks, etc..

ACTION/RALLY/ PROTESTS at the following:

  • government health offices
  • major cities, state capitols, provinces, regions
  • hospitals, clinics, malls, farmer's market,
  • protest from bed if necessary, even if the protest is only one person
  • on-line by recording and putting the video on YouTube

That way we make a huge splash.

First day local (either May 10, or May 11th ~or whatever day is best for your location!) ~ in person, and the second day global and on the internet!

Using visual aids like:

  • Picket signs, brochures
  • wearing t-shirts, buttons or ribbons
  • wearing prison clothes (trapped in our own bodies with shackles)
  • canes, walkers, wheelchairs, motor scooters
  • beds, blankets, pillows, sunglasses, ice packs, heating pads
  • sacks with our meds & supplements, side walk chalk outlines, or a casket (with names of those deceased)
  • mannequins (for those who are unable to attend, with attached picture/statement of someone who is bedbound/housebound & can't make it)
  • tent or cardboard box house (for those who lost their home due to illness)
  • human hamster ball (like living life in a bubble)
  • tie ribbons to visible trees, mailboxes or doors
  • yard signs, wristbands
  • carry ketchup in ziplock baggies to simulate BLOOD & ANYTHING else we can DO to GET THE WORLD's ATTENTION!!!!