May 12, 2019 International Awareness Day- 27th Anniversary!
This year marks the 27th anniversary since the late patient and staunch advocate, Thomas (Tom) Hennessy Jr, designated May 12th as the international awareness day.
May 12 was chosen as International Awareness Day for Complex Immunological and Neurological Diseases (C.I.N.D.) since 1992.
The diseases included in C.I.N.D., such as myalgic encephalomyelitis (ME), chronic fatigue syndrome (CFS), chronic Lyme disease (CLD), fibromyalgia (FM), Gulf War illness (GWI), mold/biotoxin illness, multiple chemical sensitivity (MCS) and now includes post-sepsis syndrome.
Tom designated May 12 as the special day to memorialize the birthdate of Florence Nightingale, the English army nurse who inspired the founding of the International Red Cross. Nightingale contracted a paralyzing CIND-like illness and became chronically ill. She spent the last 50 years of her life virtually bedridden, and despite being severely debilitated, started the world’s first school of nursing.
Patients suffering from misunderstood and neglected diseases, such as the CIND diseases (many similar to Post-sepsis syndrome, Google it and read the symptoms), have an added urgency to educate about the disease and raise awareness of the needs of its millions of sufferers. Patients suffering from debilitating neuro-immune disease have an added challenge of educating about the different "labels", name and definition of the disease.
Tom Hennessy understood that it was the government-constructed demeaning names and faulty criteria that were holding back good science which was the cause of too many early deaths and prolonged suffering for millions of patients worldwide. We deserve vindication, validation, funding, proper treatment and a cure.
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CHRONIC LYME DISEASE (CLD) or Tick Bite Sepsis or LYMErix Disease
Late stage Lyme disease or neuroborreliosis has left millions of people to suffer in isolation with a B cell immunosuppression AIDS-like illness similar to post-sepsis. Victims are frequently misdiagnosed or denied any diagnosis at all.
The only CDC-sanctioned Lyme disease testing is ANTIBODY based. People whose immune systems are destroyed (immunosuppression) don't produce the required antibodies to get a positive test.
The “Dearborn” case definition was put in place in 1994, when the now-failed Lyme vaccine, LYMErix was in the trial stage and it became known that the antigen used (OspA/Pam3cys, a highly acylated lipoprotein, TLR2/1 agonist; triacylated, that's also shed by the organisms that cause Lyme disease) was causing adverse events that looked exactly like what we know as "chronic Lyme disease" or "post-treatment Lyme disease syndrome”.
The one priority needed in order to open up the floodgates so all Lyme victims may receive proper recognition, their disability payments, and correct treatment:
Removal of the falsified Lyme disease case definition- (aka Dearborn, 1994), and then the fraudulent two-tier Lyme testing (which misses 85% of neurological Lyme patients) would be eliminated.
www.TruthCures.org is demanding a prosecution.
Whistle-blower and activists Lyme cryme group:
"Lyme Cryme" free documentary:
Social Media Profile Picture Overlays - Easy Way to Create May Awareness for ME, Lyme, CFS, GWI, FM and MCS.
There are four easy steps:
1. upload your profile photo or use your Facebook profile picture
2. Select the overlay you desire
3. Download the result to your computer
4. Upload the result to any platform where you want to raise awareness
For more information, please see:
Worldwide May Awareness
What Is Lyme Disease Website
ME/CFS Events List -
May12th.org (Canadian site)
United States (US)
USA May 12 MECFS Awareness Day Light Up the Night Campaign
Republic of Ireland